I just realized I never posted about Taylor’s most recent surgery. We had requested a different anesthesiologist this time, but she was unavailable but the doctor we got was great. We will definitely request her again.
Taylor did excellent. We we are so proud of her. Her doctor came in and Taylor actually looked her in [...]
Archive for the ‘Uncategorized’ Category
Most recent surgery
Posted in Uncategorized on May 11, 2009 | 1 Comment »
Postponed surgery
Posted in Surgery, jorrp, rrp, tagged hpv, jorrp, rrp, Surgery on October 29, 2008 | Leave a Comment »
Well the doctors office called yesterday and wanted to reschedule her surgery that was scheduled for next week. Sure I guess doctors have things that come up. But this seems like a planned day off. If you know that far in advance I guessing it’s a conscience decision. It’s not like she woke up [...]
Still here
Posted in Uncategorized, tagged artemisinin, jorrp, rrp on October 18, 2008 | Leave a Comment »
It’s been a while since my last post. Things have been crazy around here this past month and a half. Now things should slow down a bit.
Taylor voice is very hoarse again. This time her voice was stronger longer. Is that a good sign? I sure hope so. I so prayed that her own immune [...]
Talking about it.
Posted in jorrp, tagged jorrp, papilloma, rrp, Surgery on May 24, 2008 | 2 Comments »
The other day the girls and I were talking at the lunch counter. My oldest said she wanted to be a astronaut and I said ” Sure you can be anything you want to be you just have to study and work for it.” She proceeded to say ” Yeah it’s sounds fun [...]
Sometimes I cry….
Posted in Uncategorized, tagged disease, hpv, jorrp, rrp on April 25, 2008 | Leave a Comment »
For all the children afflicted with this disease or any disease for that matter. But since I’m living through this one it hits closer to home.
I’ve been reading a caringbridge site on two different girls,two different diseases. One with RRP like Taylor, the other a 5 year old with a rare form of cancer. [...]
It makes me cry
Posted in hpv, jorrp, tagged hpv, jorrp, rrp on February 14, 2008 | Leave a Comment »
The surgery to remove the tumors in her throat is over and Taylor did very well during the surgery it was just after. When she comes out of anesthesia and versed she is a totally different child. She is violent, and mad. She hits me and tells me no all [...]
Her voice
Posted in Uncategorized, tagged rrp, tumors on February 1, 2008 | Leave a Comment »
It breaks my heart to try and listen to my daughter struggle to get the words out. Her voice is very hoarse now. She doesn’t understand that she can’t strain her voice.
Yesterday she a had a few fits but isn’t that what 2 year olds do? She doesn’t [...]
Has it been a year already.
Posted in jorrp, rrp, tagged daughter, diagnosis, hpv, rrp on January 28, 2008 | Leave a Comment »
When my daughter was first diagnosed I was devastated, heartbroken, lost. I was referred to a few websites as in two per my daughters doctor which can easily be located by googling rrp. They were very helpful and still are in giving advice and medical trials and [...]
