Here is a link to a video explaining rrp and a few parents who have children effected like Taylor.
http://www.youtube.com/watch?v=6M0dWHIQJZc
Archive for the ‘rrp’ Category
Video on RRP
Posted in Recurrent Respiraory Papillomatosis, Surgery, chronic illness children, hpv, jorrp, papillomatosis, rrp, tumors, tagged chronic illness children, disease, hpv, jorrp, papilloma, recurrent respiratory papillomatosis, rrp, tumors on November 18, 2009 | Leave a Comment »
I was hoping for more.
Posted in Recurrent Respiraory Papillomatosis, chronic illness children, jorrp, papillomatosis, rrp on November 6, 2009 | Leave a Comment »
Well Taylor had her surgery last week. I had to go without my husband because he had to be out of town for work. This wouldn’t of been a problem normally but Taylor got sick on her regular scheduled date of surgery so we had to move it.
Taylor’s voice had been so strong for so [...]
Sick
Posted in Recurrent Respiraory Papillomatosis, Surgery, jorrp, rrp, tagged chronic illness children, jorrp, recurrent respiratory papillomatosis, rrp, Surgery on October 21, 2009 | Leave a Comment »
Taylor was going to have another surgery this morning. We canceled it. She started coughing on Monday and the cough has gotten worse and now she has a runny nose and is all congested. I think she is ok to go a couple more weeks without too much of a breathing problem. I just need to [...]
It’s been a strong 8 weeks.
Posted in Recurrent Respiraory Papillomatosis, jorrp, rrp, tagged chronic illness children, jorrp, papilloma, recurrent respiratory papillomatosis, rrp on October 1, 2009 | 1 Comment »
These past 8 weeks have been the longest that Taylor has had a strong voice. It just started a couple days ago to change. I was hoping they weren’t returning. I was hoping her body finally said that’s enough. But no such luck. She does have a cold, which consists of a runny nose and [...]
Good or bad?
Posted in Recurrent Respiraory Papillomatosis, jorrp, rrp, tagged chronic illness children, disease, jorrp, papilloma, rrp on April 6, 2009 | Leave a Comment »
Well Taylor got scoped on Friday. She did so well. I was so proud of her. She never flinched or anything. Just sat there so her doctor could get a good a look.
She said that she has a good airway but a small pap right at the V part preventing it from coming together. So [...]
No choice
Posted in Recurrent Respiraory Papillomatosis, jorrp, rrp, tagged chronic illness children, jorrp, papilloma, rrp, voice on April 2, 2009 | Leave a Comment »
Well we taking Taylor in for a scope on Friday. I really don’t want to put her through that because I know it’s traumatic but her doctor said she wanted to look and if her airway is closed too much she will “fit” her in next week.
Her breathing doesn’t seem compromised to me at all. [...]
New Year
Posted in Recurrent Respiraory Papillomatosis, hpv, jorrp, rrp on January 4, 2009 | Leave a Comment »
It’s been almost 6 weeks since Taylor’s last surgery and her voice is still strong. I almost hate to say anything for fear it will spoil it but I’m so happy. Usually by 4 weeks we notice a change in her voice. This time it hasn’t happened yet. Now that could mean a few things [...]
I’m lost.
Posted in jorrp, rrp on December 2, 2008 | Leave a Comment »
Taylor had her surgery and it went well. She of course still cries when she leaves us to go to the operating room. It never gets any easier.
The nurses always say you probably know this routine better then I do. I always say well unfortunately you might right. But I wish they wouldn’t say that. [...]
Postponed surgery
Posted in Surgery, jorrp, rrp, tagged hpv, jorrp, rrp, Surgery on October 29, 2008 | Leave a Comment »
Well the doctors office called yesterday and wanted to reschedule her surgery that was scheduled for next week. Sure I guess doctors have things that come up. But this seems like a planned day off. If you know that far in advance I guessing it’s a conscience decision. It’s not like she woke up [...]
embracing your differences
Posted in jorrp, rrp, tagged differences, hpv, jorrp, voice on August 11, 2008 | Leave a Comment »
Sometimes when it comes to Taylor and her voice I feel like I’m always trying to explain it in some way to someone.
For a long time I just wanted to stay at home when her voice was bad and she could barely talk. I got tired of thinking of new things to say or [...]
