Here is a link to a video explaining rrp and a few parents who have children effected like Taylor.
http://www.youtube.com/watch?v=6M0dWHIQJZc
Archive for the ‘Recurrent Respiraory Papillomatosis’ Category
Video on RRP
Posted in Recurrent Respiraory Papillomatosis, Surgery, chronic illness children, hpv, jorrp, papillomatosis, rrp, tumors, tagged chronic illness children, disease, hpv, jorrp, papilloma, recurrent respiratory papillomatosis, rrp, tumors on November 18, 2009 | Leave a Comment »
I was hoping for more.
Posted in Recurrent Respiraory Papillomatosis, chronic illness children, jorrp, papillomatosis, rrp on November 6, 2009 | Leave a Comment »
Well Taylor had her surgery last week. I had to go without my husband because he had to be out of town for work. This wouldn’t of been a problem normally but Taylor got sick on her regular scheduled date of surgery so we had to move it.
Taylor’s voice had been so strong for so [...]
Sick
Posted in Recurrent Respiraory Papillomatosis, Surgery, jorrp, rrp, tagged chronic illness children, jorrp, recurrent respiratory papillomatosis, rrp, Surgery on October 21, 2009 | Leave a Comment »
Taylor was going to have another surgery this morning. We canceled it. She started coughing on Monday and the cough has gotten worse and now she has a runny nose and is all congested. I think she is ok to go a couple more weeks without too much of a breathing problem. I just need to [...]
It’s been a strong 8 weeks.
Posted in Recurrent Respiraory Papillomatosis, jorrp, rrp, tagged chronic illness children, jorrp, papilloma, recurrent respiratory papillomatosis, rrp on October 1, 2009 | 1 Comment »
These past 8 weeks have been the longest that Taylor has had a strong voice. It just started a couple days ago to change. I was hoping they weren’t returning. I was hoping her body finally said that’s enough. But no such luck. She does have a cold, which consists of a runny nose and [...]
Good or bad?
Posted in Recurrent Respiraory Papillomatosis, jorrp, rrp, tagged chronic illness children, disease, jorrp, papilloma, rrp on April 6, 2009 | Leave a Comment »
Well Taylor got scoped on Friday. She did so well. I was so proud of her. She never flinched or anything. Just sat there so her doctor could get a good a look.
She said that she has a good airway but a small pap right at the V part preventing it from coming together. So [...]
No choice
Posted in Recurrent Respiraory Papillomatosis, jorrp, rrp, tagged chronic illness children, jorrp, papilloma, rrp, voice on April 2, 2009 | Leave a Comment »
Well we taking Taylor in for a scope on Friday. I really don’t want to put her through that because I know it’s traumatic but her doctor said she wanted to look and if her airway is closed too much she will “fit” her in next week.
Her breathing doesn’t seem compromised to me at all. [...]
That bubble burst fast.
Posted in Recurrent Respiraory Papillomatosis, jorrp, tagged disease, jorrp, papilloma, rrp on March 11, 2009 | Leave a Comment »
Well it’s just over 4 weeks since Taylor’s last surgery, the one where we had a little bit of good news. Well her voice is deteriorating fast this time. Now that doesn’t necessarily mean there are more paps although that is a possibility, but it could mean the location is right on her voice-box. Which [...]
Good news and sad news.
Posted in Recurrent Respiraory Papillomatosis, jorrp, tagged disease, jorrp, papilloma, rrp, Surgery on February 23, 2009 | Leave a Comment »
Taylor had another surgery at the beginning of Feb. I was having problems with my computer and couldn’t post about it.
The surgery went pretty well. She did throw up 3 times after this one, which she has never done before. So we are going to request a different anesthesiologist next time. He wasn’t very friendly [...]
New Year
Posted in Recurrent Respiraory Papillomatosis, hpv, jorrp, rrp on January 4, 2009 | Leave a Comment »
It’s been almost 6 weeks since Taylor’s last surgery and her voice is still strong. I almost hate to say anything for fear it will spoil it but I’m so happy. Usually by 4 weeks we notice a change in her voice. This time it hasn’t happened yet. Now that could mean a few things [...]
