Here is a link to a video explaining rrp and a few parents who have children effected like Taylor.
http://www.youtube.com/watch?v=6M0dWHIQJZc
Archive for the ‘hpv’ Category
Video on RRP
Posted in Recurrent Respiraory Papillomatosis, Surgery, chronic illness children, hpv, jorrp, papillomatosis, rrp, tumors, tagged chronic illness children, disease, hpv, jorrp, papilloma, recurrent respiratory papillomatosis, rrp, tumors on November 18, 2009 | Leave a Comment »
New Year
Posted in Recurrent Respiraory Papillomatosis, hpv, jorrp, rrp on January 4, 2009 | Leave a Comment »
It’s been almost 6 weeks since Taylor’s last surgery and her voice is still strong. I almost hate to say anything for fear it will spoil it but I’m so happy. Usually by 4 weeks we notice a change in her voice. This time it hasn’t happened yet. Now that could mean a few things [...]
Just over a month
Posted in hpv, jorrp, rrp, tagged hpv, jorrp, rrp on March 18, 2008 | Leave a Comment »
It’s been just over a month since Taylor’s last surgery and just the other day I notice a slight change in her voice. It might not be noticeable to others but to her parents it’s a heart breaker.
Now I’m not loosing hope over the DIM just yet. We wont know the degree or [...]
Even some in the medical field are uneducated about rrp
Posted in hpv, jorrp, rrp, tagged hpv, jorrp, rrp on February 20, 2008 | Leave a Comment »
I found this question and answer on a medical site. Here is the link http://www.netdoctor.co.uk/ate/pregnancyandchildbirth/204564.html
Read the full question but in short the women who had genital warts also known as hpv also found out she was then 11 weeks pregnant after the fact asks the dr if this could possibly be [...]
It makes me cry
Posted in hpv, jorrp, tagged hpv, jorrp, rrp on February 14, 2008 | Leave a Comment »
The surgery to remove the tumors in her throat is over and Taylor did very well during the surgery it was just after. When she comes out of anesthesia and versed she is a totally different child. She is violent, and mad. She hits me and tells me no all [...]
