Well we taking Taylor in for a scope on Friday. I really don’t want to put her through that because I know it’s traumatic but her doctor said she wanted to look and if her airway is closed too much she will “fit” her in next week.
Her breathing doesn’t seem compromised to me at all. She is running and playing like normal and not gasping for air which is good. But I know when she get’s tired more often it is effecting her. So wish us luck. Her next scheduled surgery isn’t until the 29th of April and I would like to keep it that way. The only thing is she barely has a voice especially since she has a bit of a cold.
I also started a forum online for support. It’s for all parents of children with a chronic illness. A place to others with who may be going through the same fear and anxieties even if the conditions are different.
