Taylor had her surgery and it went well. She of course still cries when she leaves us to go to the operating room. It never gets any easier.
The nurses always say you probably know this routine better then I do. I always say well unfortunately you might right. But I wish they wouldn’t say that. I know they are only making conversation but it just reinforces that we are hear all the time. It hurts my heart and makes me sad. I don’t want to know the routine better then them.
I’m Having a hard decision to make. Taylor’s doctor said she is leary of recommending the artmisinin for Taylor because she is so young. She said it’s not a cure it just manages it. Well I would take that. If it could prolong her surgeries that would be worth it. But she said with the potential of liver damage she said she personally would hold off until she was older.
She did say we could try cidofivor on her but it’s something like injections every two weeks for a couple of weeks. I can’t remember the exact regamin but it seemed like a lot too. And of course their is no guarantee there either. IT doesn’t cure it only prolongs the surgery. But their is also a potential risk of cancer later her in her life.
So I don’t know what to do. I’ve been asking God for guidance and I’m not seeing it if he is showing it. I don’t want to be to hasty in my decision. I want what will ultimately be the best for Taylor, but I’m lost.
